Comments on: How to Practice Self-Care When Your Partner Is Chronically Ill

By: Erin Huebscher

Erin Huebscher — Mon, 17 May 2021 15:47:25 +0000

In reply to Cat. Thank you, Cat! It's so comforting to realize that we're not alone in our thoughts and/or experiences. I do hope your husband is doing better now and that you're coping with everything as well as you have been. Don't ever forget to take care of YOU! It is essential, as you say. All the best!

By: Erin Huebscher

Erin Huebscher — Mon, 17 May 2021 15:43:02 +0000

In reply to Emily Cresswell. Emily, thank you for sharing your story! I can say now, nearly six months after I wrote this piece, that my husband is doing so much better (he had brain surgery in April). I am sending a virtual hug to you and your husband! Hang in there and continue to cherish each other, despite the circumstances.

By: Emily Cresswell

Emily Cresswell — Mon, 17 May 2021 02:24:19 +0000

This was very insightful for me to read. I am the one who became chronically ill with a neurological disorder only 3 months after getting married last year. My husband has had such a difficult time in managing and so I have sent him a link to this post. It is comforting to know other people are experiencing similar things so early in their married lives.

By: Cat

Cat — Fri, 15 Jan 2021 01:29:21 +0000

Thanks for this post. My husband was diagnosed with a neurological disease in October, after nearly two years of knowing something was very, very wrong, but not being able to find answers. Handling a chronic illness such as this takes so much time and energy, and it is not often that “younger” friends (I am 32) understand what it means to have a partner endure such a serious health issue. Getting answers has been terrifying but has also brought a sense of relief. Finding ways to take care of myself and giving permission to focus on myself has been difficult, especially when the person who is ill becomes the focus. But I have learned it is absolutely essential, for everyone’s sanity! Wishing you the best of luck in the journey.

By: 9Apps

9Apps — Mon, 11 Jan 2021 09:29:11 +0000

I am a caregiver to my beloved husband. It’s been close to two years and I still miss everything that life was before. One day we went to bed and life was normal, the next day nothing was ever the same again.

By: Erin Huebscher

Erin Huebscher — Wed, 30 Dec 2020 13:28:26 +0000

In reply to Lea. Lea, thank you for your story! I also think it's incredibly important not to lose hope. We can all appreciate that reminder!

By: Lea

Lea — Tue, 29 Dec 2020 00:12:29 +0000

Hi Erin, Thank you for sharing your story. My heart goes out to you, and your husband. I am a caregiver to my beloved husband. It’s been close to two years and I still miss everything that life was before. One day we went to bed and life was normal, the next day nothing was ever the same again. We aren’t giving up hope, ever.

I wish you and your husband nothing but the very best.

By: Erin Huebscher

Erin Huebscher — Wed, 23 Dec 2020 16:36:26 +0000

In reply to Ashley. Thank you, Ashley, for sharing your personal story. I am sending you all the light and love from here in Hamburg!

By: Ashley

Ashley — Sun, 20 Dec 2020 20:17:30 +0000

Thank you for your post. As someone who has been caregiver for my chronically ill mother, this was very helpful to hear. For years it was my little brother and I trying to care for her and attempt to have a life of our own. I was 11 when she was in an accident and now at 31 she has recently moved in with my husband and I. It has been so so challenging to care for her all these years. And no one really seems to understand. My father is not around and my old house siblings are not supportive or involved at all. Thank you for sharing your story. I know how difficult it is to take this on alone. My therapist reminded me to grieve and it was such an important reminder I had never considered. Take care.